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What You Can do For Anissa

Unless you’ve been living under a rock, you know that Anissa Mayhew is currently fighting her ass off in true Anissa style (updates at hope4peyton.org.) And our friend Megan (aka Undomestic Diva) came up with a wonderful idea that I should have posted here a few days ago, but I’m not bright. I often forget that I can get at least 4 other people to pay attention to something, and maybe even one will act. That’s called leadership, my friends. Anyway, below is Megan’s post and this is truly an awesome idea, so please do it. - Clay (MayoPie)

Most of you have heard about the devastating stroke our fellow blogger and friend Anissa suffered two weeks ago and have felt helpless when it comes to being able to help her… Yes, there are ways to donate money and awesome t-shirts to buy (with 100% of the proceeds going to her family) but still, it seems like there isn’t much we can do to help her.

But there IS something you can do. And it costs nothing but a few minutes of your time and has the potential to make a huge impact.

After reading Peter’s latest post about Anissa where he talks about showing her videos of the kids, of her family, of her friends and how it’s helping Anissa, Adrienne came up with an amazing idea… putting together a slideshow of photographs of bloggers for Anissa.

You don’t have to know or have met Anissa personally; just have heard her story and wanted to help somehow. And this is how you can.

Here’s how it works…

1. Take a high-quality photo of yourself holding a sign with a simple message for Anissa like “Sending you love” or “Keep fighting” or whatever you want to say. And yes, if you’d like to send her a cleavage shot (which she would very much enjoy) go for it.

2. Email it to me in jpeg format at: foranissa@gmail.com with your name and blog URL.

3. Tweet and/or post about this to spread the word. We’d like to see HUNDREDS of bloggers representing for Anissa. PLEASE, PLEASE, PLEASE pass on the word.

The deadline to submit your photo is Sunday, December 13th.
*Pictures only – no videos, please.

I will put all submissions into a video slideshow set to Glee’s “Don’t Stop Believin’” (music Peter has said Anissa is responding to) and overnight it to Peter for Anissa. We will also share the video with everyone as soon as it’s done.

Let’s continue to fight for Anissa.

~Megan

A long road

I’ve been closely following the progress of Anissa Mayhew and it’s been ups and downs, but the last news we’ve received seems promising. Please visit www.hope4peyton.org to get updates directly from Anissa’s husband.

The strength of this family amazes me. I simply couldn’t imagine having to go through the various struggles they have gone through, and the road to recovery will be just as difficult. I urge you to keep this family in your thoughts and prayers and if you can, please help them.

Please be well, Anissa

I don’t know Anissa Mayhew well, but I do know her well enough to be greatly saddened by the news that she’s currently in the ICU after having suffered a stroke.  Anissa and I have communicated several times over the last few months.  In fact, our inaugural post was hers and she also featured a post of mine on AimingLow, for which I was very grateful. 

In the days since, we’ve tweeted back and forth regularly, I started a mini-movement to get Ralph Macchio to speak to her (which he did and she gave me credit for, but I don’t think it was me) and I’ve grown to consider her a friend, as I have many of the people I’ve met through blogging and twitter. 

As I said, I don’t know her that well, but here’s what I know:  She’s a brilliant and funny writer (that’s the first thing I learned about her)  She’s unbelievably strong  (if you read her post here or know her story, you know she couldn’t be anything but.)  She’s a loving and caring friend (this I know from those close to her.)  She’s a kick-ass boss (this I know from those that work for her.)  Simply put, she’s one in a million.

The show of love and support (as expected) has been amazing.  I hate to imagine the loss to her family, her friends, her fans… I won’t imagine it. Please be well, Anissa. Please be well.

Please visit AimingLow to find out what you can do.  By the time I hit publish on this post, I’m hoping that good news has already been received.  I know the family needs help and people are registering to do just that.  Please do anything you can.

Update: She’s fighting hard! There was an update at 10:00 a.m. , please check the above link. Keep praying, people. Just keep praying. And thank you to all those that helped me to get Ralph Macchio to follow to her. I know she’ll absolutely love it!!! And if you’re on twitter, please follow @ralphmacchio to show your appreciation. It was really nice of him to do and he deserves our thank you!

Goodbye, Chris

The other day, I heard from a friend of mine that someone from our childhood was killed in a tragic cycling accident. His name is Chris Livingston. Though I hadn’t spoken to Chris since school, I was greatly saddened by this news. Chris had friended me on facebook and I was genuinely happy to reconnect with him in any way, because I remember him as being genuine, friendly, and knew through mutual friends he had become a very good man.

I went to Chris’ facebook page and saw a comment from Adam, and having visited his blog a few times, I thought I’d reach out to him to offer my condolences, as I sensed from his comment that the loss to him was big. I had no idea how big until I read this incredibly heartfelt and… sad post. So, so sad.

I’m not sure what we can do for this family (if anything.) Adam sent me the funeral info, and frankly, I’m not sure whether or not I should post it here. Not that a mob would show, but this is a deeply personal time for friends and family and I’m not sure posting this information is relevant. That being said, if you’re interested in learning more, helping this family, or know the victim and need the logistics, e-mail me at mayopie.ba@gmail.com. The viewing is tonight and the service is tomorrow.

I’d like to thank Adam Avitable for this heart-wrenching post. If you’ve visited his blog, you know he’s hilarious and this isn’t the norm. 

My sincerest condolences to Adam and to all the friends and family of someone whom I know will be sorely missed.

-mp

The Method of Consolation

by Adam Avitable

There’s no way to do that right. It’s impossible to properly console a mother who is crying over the loss of her son, her only child, her best friend. Crying’s not the right word. This was a complete and utter loss of all emotional faculties. Up and down my hand went on her back. A constant rhythm. That’s all I could think of. Up and down. Up and down.

Trying to give her privacy, I stared intently at the cabinet against the wall, filled with medical supplies. In the glass, I caught the reflection of his face, waxy and still. I heard her talk to him, telling him who she notified and how his son will be fine and how she’ll be strong because she knows he would want her to be. And I heard her deny it over and over again, repeating the word no with a low staccato beat. Her face buried in the blue sheet that covered him, she moaned, a low guttural sound that echoed in my head. Up and down. Up and down.

I noticed that one of the cabinet doors was slightly ajar and contemplated walking over to close it. The more I stared, the more it bothered me. Why didn’t somebody close that fucking door? The rest of them are closed and how hard is it to close. one. door? And the sheets? Why were the sheets wrinkled? Hadn’t anyone thought that the sheets should be nice and neat? Without thinking, I reached out to straighten the sheet in front of me. My hand touched his covered body. It was very solid and felt cool to the touch. And it felt wrong. So wrong.

Suddenly, I was ready to leave. If it wasn’t for my hand on the back of this woman I didn’t know, moving up and down, while she said goodbye to her son, a friend, I would have been gone. Instead, I breathed and looked him in the face and listened to her words. I felt her love and her grief and her pain and her misery as if it were my very own.

And I stood silently and like a statue, if not for the arm moving up and down, up and down, until she was done saying goodbye to her only son.

The Storm

Again, Shauna has hit the mark with another beautiful post. One that I think most of us can relate to. Thank you, Shauna, for your courage. Know that you are loved and that the world is better because you are in it. -mp

I haven’t had a lot of experience with depression. I mean, I’ve had my fair share of depressing moments, sadness, feelings of despair. I’ve never been diagnosed or treated for depression, but I have friends who are clinically depressed and who are taking medication for it.

I’ve never fully understood the gravity of depression—until recently.

Things are not so great right now. I’ve tried to hide behind the funny because that’s my style, my shield, the wall I’ve chosen to live behind. Plus, people expect me to be funny. And I wouldn’t want to let them down, or God forbid, give them the idea that I have problems. It’s easier to let people think I have magic powers—that nothing bothers me or makes me sad.

But last week, I reached the bottom. I crumbled, I broke, I bled, I cried… I cried until I was sure there were no more tears. It was the first time I ever remember thinking, I have no fucking idea what to do. I was lost. I felt hopelessness. I could barely breathe. I would swear my chest was literally caving in.

I wrote this post.

And after I wrote it I wasn’t sure I was going to put it out there for everyone to see. I mean, it’s not my usual kind of story. People don’t read me to get bummed out. They prefer to point and laugh at me—which I’m totally OK with. What scared me most was not knowing how it would be received. I was terrified beyond words to hit the PUBLISH button. But I held my breath and I did it anyway.

The power of the Internet amazes me. People I don’t know, who I only recognize by their Twitter names or their blogs came out in support of me. I am still reeling from the words expressed by everyone—the extended arms, the hundreds of emails, the beautiful, encouraging comments.

It has helped ease the pain so much.

Most people advised me to see a therapist. To you all I say, it is done. I’ve been, I’m going, it’s helping.

You know, my problems aren’t any more significant than anyone else’s, but when you’re used to being able to fix everything (like I am)—or at least be able to find in the humor in it, and suddenly you can’t, you feel powerless and out of control of your own life.

That’s where I find myself.

I’ve looked at my face in the mirror more these last few weeks than I ever have before. And I really SAW me for the first time. What I discovered about me is that there’s more to me than being the funny girl. The funny girl is hurting. And the she doesn’t know how to fix it, to make the pain go away.

The good news is, I know that everything will be OK. I know that. This is just a storm I have to ride out, and hopefully when the clouds clear, the sun will shine brighter than ever before.

I’m still sad. I’m still crying. I’m still trying to navigate my way out of the storm. And I’m pretty sure it won’t be easy. But I know one thing for sure—I’m not alone. I have my family and my friends (which includes those I’ve never met in person) to lean on. And knowing that makes it seem not so scary.

But it still hurts.

*Someone who knows a lot about depression is Danny Evans (dadgonemad.com). I consider him a friend even though we’ve never met in person. We know each other the way I know most everyone these days—from the blogosphere. He wrote an amazing book called Rage Against the Meshugenah, that talks about his battle with depression. It is of the awesome. You can find him at dannyevansbooks.com.

For Dadaw

So… Shauna asked me what to write about this week and I said “I dunno.” We’ve covered a lot on Breast Cancer and think we’ve provided a wealth of great information that I’m sure you’ll put to good use. That being said, Shauna has decided to tackle an issue that, quite frankly, scares the hell out of me. The mind is our only true safehaven, and to have it stripped away must be terrifying. Thank you, Shauna, for a wonderful post and sharing your own story.

I know about Alzheimer’s. I know firsthand what it does to a person. I’ve been there to watch the horror unfold right in front of me. It grabbed hold of my grandfather (who we called Dadaw) and took him from me—took him from my family. It was tragic and awful, and it seemed like it happened overnight.

He died nine years ago and would have just celebrated his 87th birthday. His death affected me. He was my hero.

I hate Alzheimer’s.

I’ll never forget the morning of Saturday, August 18th, 2001. My then boyfriend (now my husband) came to town to see me. We woke up that morning and for some reason I suggested we go visit my grandfather at the nursing home. I don’t know what made me think of it. It wasn’t something we normally did on the weekends. But he agreed and we got dressed and drove to the nursing home. When we walked inside we were met in the hallway by one of the nurses, and she looked me in the eyes and said, “I’m so glad you’re here. Your grandfather’s condition is grave.”

I was like, “What? What are you talking about? We’re just here to visit.”

She grabbed my hand and walked with me to his room and said, “You better go say goodbye.”

I was in shock. What was happening? This wasn’t supposed to be like this. We were just stopping by on our way to lunch. What the hell was going on?

Inside, I found my mother standing next to the bed where my grandfather lay. She was weeping quietly, holding his hand. I looked at her and she said, “I just came by to say ‘Hi’ and found out he’s dying. I wasn’t going to come today but something told me to.”

I didn’t tell her until later that I’d had the same feeling that morning.

We were just going to say Hello. And ended up saying Goodbye.

I leaned over my precious Dadaw, kissed his cheek, told him I loved him, and stood there and watched as he took his last breath. And my heart shattered to pieces. I put my hand on his face and closed his eyes. It was one of the hardest things I’ve ever done–watch one of my heroes pass away.

The next part was even harder. Calling my grandmother. She hadn’t been there. She didn’t know. She didn’t normally visit him until lunchtime.

I dialed her number and when she answered, I told her she needed to come to the nursing home as soon as possible. I didn’t tell her that the man she’d called “husband” for over 50 years had just died, but by the quiet calmness in her voice, I think she knew.

I then had the awful task of calling everyone in the family. Shortly after, the room that my grandfather had spent his last years in was filled with children, grandchildren, nieces, nephews, uncles, aunts, and cousins.

Over the next few days and weeks, we celebrated our beloved grandfather by telling stories, recounting fun memories, enjoying each other’s company.

And then 9/11 happened. The world was going mad. And I remember thinking I was glad Dadaw wasn’t around to witness the horror. He was a kind, gentle man and seeing what the rest of us were witnessing would’ve broken his heart. At least he’d been spared that.

What sucks most about Alzheimer’s is that it’s a slow death. The person afflicted thinks he/she is just getting old and forgetful. That may not be the case. If you know someone who is experiencing memory loss and forgetfulness, take him/her to the doctor. There are treatments and medications available that help fight the disease, but as of this moment, THERE IS NO CURE.

And it sucks. The world can’t afford to lose any more Dadaws.

Check out www.alz.org

www.shaunaglenn.com

So… until I actually get to putting in the writer’s name in the little author space in some wordpress button somewhere, I’m going to give a little introduction of the author. Jody is awesome. She is a breast cancer survivor and loves riding a bicycle. If you’d like to know more about her please visit her blog

By Jody Schoger

Once you start thinking you know a lot about a topic – in this case, breast cancer – something happens that surprises you. This past spring the 22-year old niece of a dear friend was diagnosed with breast cancer. The news shocked me, and I’m a breast cancer survivor.
We don’t have the answers yet to “why this young woman” or “why me?” The question is:
Why anyone? Since we don’t know we can only act on what IS known. Here are ten easy things you can do – starting today – to take up the fight.

1) Do everything in your power to stay physically, emotionally and spiritually healthy. Control the things you can! If you smoke, stop. If you drink daily, talk to someone.
2) Know your own risk factors and move proactively to combat them. Women 40 and older are advised to get a yearly mammogram. The best way to show patterns over time is to have your mammogram at the same facility every year. Is the facility an accredited breast care center? Ask.
3) Understand that “breast cancer” is not a single disease but many. There are various types, characteristics and qualities. You and I can have the same stage and type of breast cancer, but very specific proteins can express themselves in ways that make the cancers dramatically different. This is why accurate biopsies and pathology studies are essential.
4) Remember that the majority of women are living well five, ten, twenty, thirty years after their original diagnosis. In fact, a report published last week from the American Cancer Society points to dropping mortality rates from breast cancer. You’ll know you’re cured, my oncologist told me, when you die of something else.

5) Participate in research that advances understanding of the disease. Pioneering breast advocate and surgeon Dr. Susan Love’s Army of Women — www.armyofwomen.org — is currently seeking volunteers for studies that require very little of your time. Please visit http://www.armyofwomen.org and sign on.

6) Another land mark investigation, the Sister Study, is a massive effort to learn how environment and genes affect the chances of getting breast cancer. To date this is the ONLY long-term study of women 35-74 who have not had breast cancer but have a biological sister who has. You could be eligible for “The Two Sister Study” if you have a sister who was fifty or younger when diagnosed with breast cancer (within the past four years): call 1-877-474-7837 (1-877-4SISTER).

7) Help eliminate a fear of cancer by taking action. Knowledge is power, right? Join one of the many fund-raising events in the greater Houston area, from fashion shows to the “Race for the Cure” or “Tour de Pink” sponsored by the Pink Ribbons Project. You can also advocate for breast cancer research through the National Breast Cancer Coalition (www.stopbreastcancer.org) and for cancer survivorship through the Lance Armstrong Foundation.
For reference material, the book for your medical library is Dr. Susan Love’s Breast Book: 4th edition.

8) Mom was right on the fruit and vegetables. Stock up! Your Mom may have missed the boat on processed foods — but you don’t have to. Plus, once you cut junk food from your diet you’ll feel better. Honest. Studies also point to the importance of Vitamin D in healthy cell functioning. If you skip dairy, please ask your doctor or a nutritionist what the best supplement for you might be.

9) Visualize what this world would be like without cancer. Wow. Let’s use that hope to continue our advocacy.

10) If you are diagnosed, take a moment, and collect yourself. Let your heart fall back into its normal rhythm. Let yourself be comforted and surrounded by loving friends. And always remember when we get right down to the simplest truth: breasts aren’t everything. Life is. Enjoy every moment.

Resources:

Newly Diagnosed:

1) American Cancer Society
2) Breast Cancer.org
3) National Breast Cancer Coalition Fund – Guide to Quality Care
4) Network of Strength (24-hour support/Charity Navigator 4 Star Listing)
5) Lance Armstrong Foundation

In Houston:
1) Pink Ribbons Project
2) The Rose
3) Susan G. Komen for the Cure
4) The University of Texas M.D. Anderson Cancer Center**
Morgan Welch Inflammatory Breast Cancer Clinic

I love this woman. She’s hilarious. Her name is Steph. I’m not sure that she wants everyone to know her full name, and I could ask her, but I’m on a schedule here. So I’ll ask her after I post this and come back and do it, or not, depending on her answer. Anyway, you should go to her blog, too, it’s one of my favorite places to play. Sometimes she will even show you her boobs. It’s that awesome. And it will definitely make you laugh. Also, she gave me specific instructions on how to post this, but I’m not bright, so any mistakes you find below are likely caused by me.

So. ClayoPie was like, “Hey, could you write a post about breast cancer?” And I was like, “Sure, why not?” Because, you know, I’m a BREAST CANCER EXPERT and shit. Except the part where everything after “Sure, why not?” is a BIG, FAT LIE since what I know about breast cancer is what I managed to learn in my last 5 minutes of frantic Googling. Which is a pretty sad statement when you think about it, really.

I mean, I’m a chick. With boobs even. You’d think I’d be ALL over this, right? Sadly, no. I mean, I check myself once a month…sometimes more if I’m feeling really saucy because you know, my boobs are kind of awesome. Plus, I’ve heard about how I should do self-exams pretty much since I was old enough to have boobs, and that’s been…well, NEVER MIND how long that’s been. Suffice it to say it’s been a while. For sure long enough for me to have that particular lesson down.

So, what’s with me not knowing about breast cancer? That’s ridiculous and silly and wrong. Especially when I think about people like my friend, Melanie, who’s going to walk for THREE FREAKING DAYS for the Breast Cancer 3-day so they can find a cure. I bet Melanie knows all kinds of stuff about breast cancer like how, in a single lifetime, 1 in 8 women will be diagnosed with this or how, even though family history increases the risk, the majority of people diagnosed with breast cancer don’t have a family history of breast, uterine, ovarian or colon cancers. I bet Melanie also knows weird shit like when you started getting your period (before age 12) or went through menopause (after age 55) increases your risk.

That Melanie, she’s a smart, smart cookie. She’s also getting up off her butt and doing something to contribute to helping end this disease which tears apart so many lives and takes so many mamas and daughters and sisters…and hey, some daddies and brothers and sons, too. I admire the hell out of that, and I’m inspired to start doing more. Don’t get me wrong – I’m not up for hiking my ass around for three days, but giving some money to someone else who’s going to do just that? Yeah, I can do that. I really, really can. I hope you will, too.

Boob Cancer

So… we’re adding some writers to the staff over here at The Bloggess Army, and one day I’m going to plug their names into the system so instead of saying “by mayopie” it will say the name of the actual author.  But because I hate buttons and cling to lazy like Linus clings to his blanket, I’m just going to give a little intro.

I’d like to welcome Shauna Glenn to the staff.  She’s funny and likes wine, which is weird, because, me too.  We also both love saying “vagina.”  I’m not sure if she breaks into song about them like I do, but probably.  Anyway, Shauna has boobs and from what I understand, pretty nice ones (at least according to her.)  She also wrote a book called, “My Vagina and Boobs: Awesome.”  At least that’s what it called in a dream I had the other night. You can find out more about it on her blog, which is really funny, as I’m sure her book is.  I’m going to read it as soon as it’s a movie (no offense, Shauna, remember: Lazy.  Plus I only read in the bathroom, and I have too much respect for you to take you in there with me.)

 

I play with my boobs…and you should too. Not mine. Yours

I’ve never had to worry about losing my boobs to cancer—or worse, dying from cancer. And I hope it stays that way. Personally, I see myself dying at the ripe old age of 95, while being ravaged by a much younger man (70-ish?) who still has his own teeth. Not from stupid cancer.

My step mom knows too well the battle of the boob cancer. She was diagnosed over 10 years ago and had to have one removed. She didn’t share all of her feelings with me, but I’m sure it was hard losing a part of herself—THAT part of her in particular. That much was evident. You know as women we tend to put so much of our self worth into our bodies—being able to birth babies and nurse them—with our boobs.  We’re hardwired like that. It’s part of our charm.

 I wasn’t exactly sure how to act or what to say after her mastectomy. So I did what I always do in uncomfortable situations—I tried to be funny. I drew her picture of a woman and instead of having two breasties, she had one giant boob in the middle of her body and then I wrote the caption “Well, I guess one is better than none. And also? You didn’t die. Which is better for me.”

 She laughed and hung it on the refrigerator.

 I’m not trying to make light of the seriousness of breast cancer—or the traumatic experience of losing one or both of your breasts. It’s ridiculously serious business, people. And it can totally be detected early if you do one very simple thing…

 Play with your boobs.

 Me? I touch mine all the time. I LOVE my boobs. So I really look forward to the once a month, stand in front of the mirror, breast exam.

 Yeah baby.

Learning how to properly check your breasts for lumps is the key to detecting breast cancer early—and possibly kicking its ass.

No more women need to die from the suck of this disease.

I know women (that’s plural—WOMEN—frightening isn’t it?) who’ve had breast cancer and survived it. I know one who didn’t. It’s senseless and downright tragic. We have to arm ourselves by getting regular check ups, knowing our family history and by being on the lookout for changes in our bodies—especially our boobs.

Protect yourselves. Be proactive. Play with your boobs. Get your mate or your husband or your boyfriend to play with them. It’s for your own good. Who knows? It could save your life. And you’re totally worth it.

http://www.cancer.org/docroot/cri/content/cri_2_6x_how_to_perform_a_breast_self_exam_5.asp

The following post was written by Jody Schoger. Jody is a breast cancer survivor and now an active advocate in the fight to raise breast cancer awareness and find a cure. Please read her blog to find out a little more about this amazing woman and what you can do to help her or join the fight yourself. We’d like to thank Jody for contributing this and assure you that it’s full of excellent information that every person with boobs should have.

Toward the end of September, when you start drooling at the thought of candy corn, stop right there. Before anyone sees you, buy every last bag from your local grocery, then quick like a bunny, turn and run in the other direction. You are about to be surrounded by something bigger than candy corn, Halloween, and Thanksgiving all rolled into one: the Pepto-Bismal pink cloud of breast cancer awareness.

October is here. If by some strange gyration, you end the month without shelling out for yogurt with the pink lids, pink lingerie, ‘special edition’ lipstick, boots or even – heaven forbid – a Pink Collector Barbie, then you will have avoided the immense emotional tug of cause marketing. Congratulations! I’m bothered by much of the hype myself and, along with 2.5 million other women in the United States, I’m a breast cancer survivor.

At first the pink ribbons seemed innocuous enough to me. If you can forget the dippy tune, initially the “tie a yellow ribbon round the old oak tree” campaign was a way to keep Americans mindful of POW’s in Cambodia and Viet Nam. Since then we’ve gone from a single color to a technicolor rainbow. There are so many different ribbons it’s easy to forget what the colors are all about in the first place.

Last Thursday an entire newspaper section – guess what color – from a community chain arrived in the driveway. Ads upon ads of “Breast Cancer Awareness” specials filled the pages. How much of that revenue actually provides an underserved woman with a mammogram is anyone’s guess. Worse yet, there were a few feature stories about survivors whose treatment – to me — seemed “over the top,” not to mention insanely expensive. There was only one solution.

“Oh, Good Bloggess,” I screeched, “I’m a breast cancer survivor. What can I do to help educate women on making good choices if diagnosed? Keep reading stupid, stupid, info.”

To those of you who don’t know, the good bloggess (unlike that other bloggess, the dirty one) Is the fairy godmother you never had. She WANTS to grant your every wish, especially if you are altruistic,
randomly perform acts of kindness, and have never murdered anything, including grasshoppers. She understands that women who have had breast cancer can, on occasion, become crazed.

So here come the facts first, sisters. Then I am going to extract a promise from you. For the next five minutes I’m going to ask that you try to forget all the hype, the boob jokes, the ‘crazy, sexy cancer’ talk. There’s nothing sexy about cancer or any illness that has the potential to knock women (and men) down in the prime of their lives. Because these are the stories you see, these are the stories you hear about. Some 40,000 women die a year from breast cancer. Yes, it can be and is a killer. There’s nothing sexy in chemo, or radiation or surgery or hormone therapy. A lot of it really sucks, in fact.

Here are a few things to keep in mind.

1) Facts.

On a yearly basis, more women die of heart disease than breast cancer. In fact, more women die of lung cancer (69,078) than breast cancer.

What makes breast cancer so difficult is that it IS the biggest killer of women aged 45 – 55, and both Hispanic and African American women continue to have higher mortality rates. This is a critical area of research.

Yes, one in eight women will be diagnosed with breast cancer over the course of an 80-year lifespan. Another way, there is an 87.5% chance you won’t EVER get breast cancer.
And of the 192,000 estimated cases diagnosed this year, just 5% of them will be hereditary. Eighty percent of all cases will not have any signs of distant metastases (cancer in other parts of the body). This is how the five-year survival rates are close to 98%. That’s good news.

2) Mammograms aren’t fail proof. They can result in a “false-positive” or mistaken reading. This means you are called back and – after they peel you off the ceiling – you either have another mammogram or an ultrasound for a closer look. This happens. It is not the end of the world – it just feels awful for a short period of time.

3) Your “Body Protection Plan”

I read once that every woman faces a diagnosis of breast cancer each time she has a mammogram. If that is true, then I suggest you take this a step further. For Pete’s sake, we have fire drills, burglar drills, hurricane escape routes and checklists. Why not develop your own “Body Protection Plan?” Really. Take a few moments and map out some key factors should you have to face breast cancer and treatment decisions. I’ve included a short list of resources that are part of the process.

Take it from a veteran and:

1) Refuse to feel pressured – from anyone.

2) Designate a friend to help you gather facts. This person is essential. This person is the one who refuses nitrous and novacine at the dentist. She/he loves statistics and can explain them to you.

3) Get two or three opinions. In Houston we are fortunate to have two nationally-designated cancer centers. Right here. People come from around the world to go to MD Anderson. Believe me, I-45 is the pits but not impossible. With a multidisciplinary approach, the surgeon, oncologist, radiation oncologist and nursing staff all review your diagnosis and options at one time. If you are going to consider plastic surgery doing so from the start can save you tons of heartache later.

4) If your diagnosis is DCIS understand that treatment for DCIS is evolving and controversial. Insist on understanding what your risk, absolute risk and relative risk factors are. Yes, it’s harder to wade through more information. Realize you would do so for your children, then do so for yourself.

5) Divide and conquer. People will materialize from trees it seems, and from around every corner with offers to help. Let them help you! Let them love you, take you to the spa, or bring you hysterically funny movies! If the offer to bring food, tell them what you like. You’ll help them by doing so.

6) Finally, take all this information, print it out, have it laminated. Now put it in – OK — a pink folder and stash this in the freezer. Your husband or partner might think you’re nuts, but of course this will not be the first time.

I hope against all hope that you can leave your folder in the freezer. Mine is here in my office, I update it with new findings all the time. I support cancer organizations I believe in, and there’s a phenomenal community of survivors out here if you need us. Take care.

http://www.twitter.com/jodyms

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